||Released: November 2013
Aboriginal patterns of cancer care in NSW
Qualitative research conducted at the UNSW Centre for Social Research in Health, in collaboration with Cancer Council NSW and The University of Sydney, investigated the needs and experiences of Aboriginal people with cancer, living in urban and regional New South Wales. Three papers have now been published. They reveal the importance of working with Aboriginal communities and community-controlled health organisations to increase cancer literacy and awareness of cancer and cancer care, as well as addressing broader issues affecting social inclusion within
mainstream cancer care services. The present cancer care workforce, which is mainly non-Aboriginal, will require greater support in increasing their cultural awareness and confidence in ‘ways of speaking’ about cultural difference if the growing numbers of Aboriginal people affected by cancer are to be effectively engaged in care and treatment into the future.
The first paper focuses on issues relating to social inclusion for Aboriginal people with cancer; the second on issues relating to cancer literacy among Aboriginal people; and the third on the ways health professionals spoke about the issue of cultural difference in cancer care.
What next? Researchers at Cancer Council NSW who are conducting the quantitative studies in this project plan to publish a number of papers which they hope will provide important insights into the pathways to diagnosis (particularly barriers to timely diagnosis) for Aboriginal people in New South Wales, as well as their patterns of care (particularly treatment received) and survival following a cancer diagnosis.
Click the following link to contact Dr Christy Newman
Treloar, C., Gray, R., Brener, L., Jackson, L. C., Saunders, V., Johnson, P., Harris, M., Butow, P., & Newman, C. E. (2013). “I can’t do this, it’s too much”: building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers. International Journal of Public Health. Advance online publication. http://dx.doi.org/10.1007/s00038-013-0466-1
Treloar, C., Gray, R., Brener, L., Jackson, L. C., Saunders, V., Johnson, P., Harris, M., Butow, P., & Newman, C. (2013). Health literacy in relation to cancer: addressing the silence about and absence of cancer discussion among Aboriginal people, communities and health services. Health and Social Care in the Community, 21(6), 655–664. http://dx.doi.org/10.1111/hsc.12054
Newman, C., Gray, R., Brener, L., Jackson, L. C., Johnson, P., Saunders, V., Harris, M., Butow, P., & Treloar, C. (2013). One size fits all? The discursive framing of cultural difference in health professional accounts of providing cancer care to Aboriginal people. Ethnicity and Health, 18(4), 433–447.